I have been in contact with a pediatric nurse that is a friend of our family. We have had some lengthy discussions and both done some researching. For now we are dealing with a "mystery illness" but we both came up with information pointing towards the possibility of lupus. That is not a diagnosis at this point and I immediately took Sierra in to see the local doctor we are using. She immediately admitted this was more than she could help us with and ordered a referral to a major medical group out of our area.
I have had a more reassuring discussion with a friend that has been through Lyme's treatment and was cured but had to go through a much longer round of antibiotics. I very much hope this is the case for Sierra.
Either way, I am anxious to get her appointment. Flooding near our local area seems to have delayed care. My home phone got struck by lightning during one of the storms and I may have missed a call regarding an appointment. Spring Break also happened for our local area I am planning to make phone calls on Monday morning to check the appointment status. So ready for answers.